Two local women share life with rare sun condition, urge continued drug development

ADVOCACY
Written By Anna Mann

Boston 25 News | February 26, 2026


Ginger Gonsalves and Becky Kelliher joined Kerry Kavanaugh to discuss their experience living with EPP and their positive experience on bitopertin, and to advocate for approval of bitopertin.

Watch
Watch
Anna Mann
Previous

Disappointed by the FDA’s ruling on an investigational EPP treatment
Next

FDA Launches Framework for Accelerating Development of Individualized Therapies for Ultra-Rare Diseases